Monday, August 10, 2009

In Sickness And In Health

Recently, while I was browsing through some old photos, I came across some of Angelina that made me cry. They weren't cute or endearing, they were downright painful to see. These were photos of her eczema that I had sent to a friend in the hope that this friend might be able to suggest something we could do for her.

Seeing those photos again was both shocking and encouraging. Shocking because it hit me for the first time just how much our little girl suffered for months on end. Encouraging because I am SOOOO thankful that we are not in that place any more. Now, the eczema covers perhaps 5% of her body, then it was more like 90%.

Anyone who has never had an itchy rash simply can't imagine what it's like. If you haven't experienced it, you can't possibly fathom the agony of itching so intense that you are willing to take almost any pain just to have a few moment's relief from that itch.

Likewise I can't imagine what it is like to have a child with some other chronic illness. Although it would be foolish for me to think that I understand what it would be like to have a child with cancer or Downs syndrome or diabetes, or any number of other conditions, I believe that there is some common ground when you have suffered through broken nights and agonising days with a child limited by pain or disability. I believe that there are lessons we can learn together for the sake of our beloved children.

When we experience (as so many of us do in one way or another) being unable to offer our child relief from their grief or pain or frustration, we naturally want to protect them from any other pain or suffering. We want to wrap them up in every possible comfort to compensate for our powerlessness. We want to shelter them from every external frustration and inconvenience to make up for the fact that there is NOTHING we can do to stop or control that inner pain. Those who have been there will understand exactly what I mean when I say that that NOTHING, that complete and utter helplessness, can become the prison of a parent's worst nightmares.

However, in those days of darkness, I truly believe that in order to become our children's allies and not their enemies we must not protect and shelter them as we so desperately desire. OF COURSE we should always offer the comfort and shelter or our unconditional love, but that same love must still teach them the immovable and unchanging standards of right and wrong.

When a suffering child lashes out physically or verbally at others, our temptation as parents is to make an exception to our own standards - "Michael was just frustrated because no one could understand him, that's why he punched his little sister in the face"; "Annabelle is in a lot of pain, I can't blame her for cursing the nurse who was taking her blood"; "People call Jennifer an idiot all the time, so it's fair enough for her to call her teacher an idiot". I am NOT suggesting that we shouldn't allow our children to express their pain, but if we allow them to express pain in a way that is deliberately and consciously hurtful to others, we are robbing them of a tremendous gift.

"What is she on about?" I can hear you ask! Only this: in hindsight, I can see that the experience of suffering has left our Angelina with a legacy of empathy, hope and patience. Don't get me wrong, we are FAR from the perfect parents, and Angelina is by no means the model child. We DID make too many allowances for her in our moments of weakness. However, our overall goal was to teach her to manage, and grow from, her pain and frustration. While we would be deceiving ourselves to claim 100% success, I can see that these experiences have left a positive mark on her character. We can see now that Angelina doesn't give up straight away when a task gets too hard - some of this is personality, of course - but I think her experience of pushing through pain in the real world (not in a parentally created padded cell) contributed to her spirit of endurance now.

I'd just like to encourage all the parents out there to keep the end goal in mind when your children are in distress. While we don't want our children to suffer unreasonable pain, I think it's worth pausing for a moment before we reach for the panadol or ice cream or remote control - a few of the quick ways of easing our child's suffering or distracting them from sadness, anger or frustration. When we instantly remove mild pain or distract them from minor emotional distress we may be robbing our children of the gift of resilience. Our goal for our children is surely that they find true joy and satisfaction in life, even during unfavourable or downright horrible circumstances that are completely out of their control. We want to encourage that strength of character only born through suffering - the strength of character that will enable them to stand up for truth and right, even when the consequences may be pain or even death. I would rather teach my children to die for what is right than to simply survive at all costs.

If we teach our children, by simply rescuing them from all suffering, that happiness and joy come from the outside, we leave them utterly helpless against the future storms that will rage against them in this increasingly toxic world. On the other hand, if we teach our children to face suffering with courage, dignity and hope, we equip them to be a shining light in the darkness of an increasingly immoral world. We help them build the inner strength that allows them to live this temporary life with integrity, looking forward to an unimaginably beautiful eternal future reality.

Allowing our children to suffer is an incredibly difficult and often discouraging road to walk, but our pledge to our children should be as it is to our husbands and wives - to give them our best in sickness and in health, until death us do part. Whatever your personal journey, I pray that God be with you.

2 comments:

Nat said...

A lot of great food for thought here skimbly. I am often very grateful that Cassia has been in near perfect health for all of her short life so far (of course anything could change), but I realise that wasn't the point of your post anyway. I can see you've put a great deal of thought into expressing what you want to say here, and I just wanted to thank you for sharing such a painful part of your own (and Angelina's) journey. I'm so glad you can see the benefits of what you've been doing for her, and hope that it makes your own heartache over her experience worthwhile.

Anonymous said...

Thanks for your thoughts on this. I find the trials of people (sometimes severe) a test of faith, but your reflections are encouraging.

I suppose the idea that good people should live charmed lives is a very shallow concept of what human life is all about, but that thought comes so naturally to us.